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The Oncologist, the Patient and CKN — Sharing Knowledge

#KidsCancerPain

Children with cancer experience pain, often severe and prolonged, over the course of their disease and treatment.  We are partnering with “The Centre for Pediatric Pain Research” and a research team of internationally known health researchers and clinicians led by Dr. Christine Chambers (IWK Health Centre) and Dr. Jennifer Stinson (SickKids) to bring the best research evidence about children’s cancer pain to parents who need it through social media

Unfortunately, we know that children with cancer don’t always receive the best pain management possible, and that parents are often looking for more solutions at a time when they are stressed and exhausted. We cannot think of a better way to use our trusted CKN platform than to fast track evidence-based information to parents, allowing them to serve as powerful advocates to help improve their children’s pain management.

We will be addressing this problem through a social media campaign for parents: “Making Cancer Less Painful For Kids” (#KidsCancerPain). The campaign is funded by a research grant from the Canadian Cancer Society.

Over the next 12 months, we will be bringing parents the very best, cutting-edge research evidence about children’s cancer pain – what causes it, common myths, how to assess it, how to treat it, and more! And we’ll be sharing this information with parents in a series of blogs, videos, images, Facebook posts, and Twitter chats, all posted and shared on our website and social media.  The research team will be studying the reach of the campaign and its impact on parents.

If you are a parent or caregiver who has a child with cancer (aged 0 to 18 years) currently in treatment, remission or who is a survivor, then you are eligible to complete this online survey. Click here for the survey.

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A Note from the CKN Team

 

CKN Collaborates with the Canadian Fertility & Andrology Society (CFAS) to Benefit Young Adults with Cancer

 

We are proud to announce that the CKN/CFAS National Oncofertility Database is the first of its kind in the world!! You may be wondering:  how did a cancer education resource like CKN get involved with fertility?  The answer is simple:  we listened….

 

And after hearing firsthand from young adults with cancer about how unaware this population was about the effects of cancer treatment on their future fertility and the current fertility preservation options available, we decided to use our online platform to build the first Oncofertility Referral Network in Canada.  This free network offers patients and oncologists the ability to make instant, online referrals for cancer patients to local fertility clinics in their area.  We also included a library of the most-up-to date research in oncofertility and fertility preservation written by the world leaders in this field.

 

Once the Referral Network was off the ground we became aware of a new need; a need which, after some collaborative meetings with the CFAS, quickly turned into our next project:  The CKN/CFAS National Oncofertility Database Project.  This project was created to gather data from fertility clinics across Canada with the purpose of creating a baseline from which to track fertility preservation referrals and decision-making for cancer patients.  The database anonymously gathers
information about the patient as well as about the specialty of the referring physician and stores it on our secure system.  In the future, this information will be studied in order to improve the status of fertility preservation for young adults with cancer by monitoring who is making the referrals, who is receiving them, and patient decision-making about the use of preservation technology.

 

We launched this project on December 1, 2015 using the CKN platform, with 38 clinics across Canada signed on to participate.  The database has been very busy in the initial 6 months since launch, and we expect an even higher participation rate in the second half of the year.

 

 

Comments?  Please email karen@cancerkn.com.

 

 

The Team

Lorne Cooper - CEO, Multimed Inc.

Lorne’s ability to develop a conceptual model into practical programs and sustainable businesses is an expertise sought out by many corporations, non-profit organizations and small businesses. His ability to ascertain the marketplace and identify key opportunities for project development has been the cornerstone of his career.
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Karen Irwin - CKN Project Co-ordinator

As Project Coordinator, Karen liaises with all CKN editors and writers and is responsible for managing the website and its editorial content.  Karen brings her unique personal perspective to CKN, after losing her son to cancer at the age of 7.  As a pediatric caregiver her experience and insight plays an important role.
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Oncofertility Referral Network

Oncofertility has emerged as a new interdisciplinary approach to address the reproductive future of young men, women, and children facing a life-preserving but fertility threatening cancer diagnosis. The CKN Oncofertility Referral Network is a nationwide platform that links patients, physicians and fertility clinics to ensure time-sensitive needs are met in providing fertility options for young cancer patients as they embark on treatment.