Mission Statement: To mitigate the current disparities of care for AYA with cancer and survivors of cancer in childhood through advances in treatment and research, respecting the unique circumstances and needs of this population, enacted across all health care jurisdictions in Canada.
The Task Force was established in 2008 with the support of the Canadian Partnership Against Cancer and C17, the consortium of Canadian pediatric oncology programs. AYA with cancer have unique needs related to their maturational development and the biology of their diseases. Deficiencies in the care provided by the pediatric and adult cancer care systems result in long-term adverse health and social consequences, an increased burden on the healthcare system, an overall loss of productivity and a drain on health resources and the economy. Task Force members are from all parts of Canada, and represent all stakeholder groups including survivors, health care practitioners, administrators, and policy-makers. In 2011 the Task Force published broad principles and recommendations for the provision of health care in Canada for adolescent and young adult-aged cancer patients and survivors. The six broad recommendations highlight the need for age-appropriate psychosocial, survivorship, palliative, and medical care as well as research to redress inequities in the care provided to this group relative to both younger and older cancer patients. Task Force Working Groups are currently preparing guidance for active care, guidelines for follow-up care, recommendations on how to increase accrual to clinical trials, and an AYA-specific distress-screening tool. Improved care for this group will enable individuals to reach their full potential as productive, functioning members of society, providing economic and other societal benefits.
A note from Lorne Cooper, Founder Current Oncology; Cancer Knowledge Network, Founder/CEO Multimed Inc.
As a member of the Oncofertility Working Group, we collectively strive to improve the quality of life for AYAs living with cancer, and fertility preservation is a crucial issue for this age group. Through our Oncofertility Referral Network, CKN has proven to be the leader in the Canadian cancer community allowing instant online referrals to local fertility clinics, as well as providing a library of resources to oncologists and patients. I would like to share with you the Oncofertility Working Group’s power point presentation on fertility preservation in adults with cancer.
View the Powerpoint Presentation: Fertility Preservation in Adults with Cancer