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Friends:  Why They’re Good For Us

Power of Words

Together with Sharon Bray – teacher and author of two books on writing and health – CKN welcomes you to our new Writing Series where Sharon helps readers tap into the healing power of writing during difficult times.  As Sharon puts it, “Your stories matter. You are your stories. Our stories shape us and act as the lens through which we see the world. It’s through story that we make sense of our lives, reclaim our voices, and learn our words can touch others’ hearts.”  Follow along with this bi-monthly series with Sharon and please send us your stories….they matter to us.

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Right to Try: A Significant Setback to Drug Development for Childhood Cancer

by Jonathan Agin, CKN Childhood Cancer Advocacy Editor

 

The United States House of Representatives is about to take a vote today (March 13, 2018) on a piece of legislation that is known as “The Right to Try Act of 2017.”  HR 878 will come to the floor for a vote at approximately 6:30 pm.  Over the summer the Senate passed S. 204 which, by the House moving on the legislation which is likely to pass tonight, will then be ripe for the Senate to once again move the legislation forward for signature by the White House and thus Right to Try will be codified on the federal level in the United States.

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Advocate Me

by Sue Robins, Living with Cancer

I never wanted to be an advocate. I’m a conflict-adverse introvert by nature. When my youngest son was born with Down syndrome, the title of Advocate was foisted upon me.  I was also suddenly a Special Needs Mom.  These were clubs I never signed up for. 

Thrown neck-deep into the health system with a baby with medical issues, I quickly learned to speak up at specialists’ offices to get my questions answered.  I figured out that most advocacy work is relationship-based, which means if you have a relationship with the person you are directing your advocacy efforts towards, things will go much better. 

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Neurological Side Effects of Childhood Leukemia Treatment

by Vicky Forster PhD, Childhood Cancer Survivor

 

More children than ever before are surviving cancer for decades after their original diagnosis. However, survivors can experience long-term health effects from treatment, with the Canadian Cancer Society saying that two-thirds of children will develop one or more of these chronic or long-term conditions. In many ways, researchers and health professionals are playing catch-up trying to figure out what aspect of a childhood cancer experience may be responsible for these late health effects. This is particularly tricky with regards to psychological and neurological effects of treatment and for many chemotherapiesit is still unclear what impact these might have on the developing brain.

 

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Learning to Live with Cancer

Power of Words

Together with Sharon Bray – teacher and author of two books on writing and health – CKN welcomes you to our new Writing Series where Sharon helps readers tap into the healing power of writing during difficult times.  As Sharon puts it, “Your stories matter. You are your stories. Our stories shape us and act as the lens through which we see the world. It’s through story that we make sense of our lives, reclaim our voices, and learn our words can touch others’ hearts.”  Follow along with this bi-monthly series with Sharon and please send us your stories….they matter to us.

Continue reading

Don’t Be a Stuffer

by Gail Fay

In May 1999, as a recently engaged thirty-two-year old, I was diagnosed with uterine cancer. Given the two western medicine optionshysterectomy and a relatively untested drugI opted for door number 3: an alternative juicing therapy. Six months later, however, it became clear the cancer was too aggressive and I ended up having a hysterectomy anyway.

I never really wanted kids. I mean, I didn’t not want them, but I wasn’t the kind who had been dreaming of being a mom. However, having the choice taken away was hard. Now I would never find out if our child had my husband’s eyes or my smile. I would never experience pregnancy or the incredible reality that we made this little human.

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