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The Oncologist, the Patient and CKN — Sharing Knowledge

Tag Archives: cancer advocacy

5 Things for Health Care Providers to Consider When Communicating with AYAs

clarissashilstraby Clarissa Schilstra, CKN Editor

 

Over the past few months, I have been working as a health coach in a program for Adolescent and Young Adults (AYAs) with chronic illness, including AYA cancer patients and survivors. My job has been to help them work through limitations imposed by their illnesses, as they try to reach important goals they have set out for themselves. After a few weeks of coaching, I and the other coaches I work with, noticed a trend: every single one of the patients being coached through the program felt uncertain or confused about how to communicate with their health care providers (HCPs). This made them frustrated or nervous on more than one occasion, and those communication struggles often left them feeling like they did not have full control over their care.

 

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Welcome to My Reality: by Childhood Cancer Survivor Danielle

DanielleCloakeyby Danielle Cloakey, Childhood Cancer Survivor and Advocate

 

Imagine for a second that what tried to kill you as a child still runs rampant today, wreaking havoc and destroying lives. Can you see it? Welcome to my reality. I am not arguing that cancer is not a monster, because it is. It crept into my life a few months after my first birthday, and its greedy fingers have not yet let go even today, 34 years later.

 

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Candace Henley and The Blue Hat Foundation

RobinMcGeeby Dr. Robin McGee, CKN Editor, Survivor, Advocate

 

Cancer Advocacy for Minorities and the Medically Under-Served

 

When Candace Henley was diagnosed with colorectal cancer at 36, her journey to survival took her to brutal places.   She fought crushing financial and psychological pressures to make it through, a story she shares openly.  She faced bankruptcy, homelessness, and psychological collapse.  “I made a promise to God,” she remembers, “that if I survived I would reach back and help others, and He would let me see my youngest (then only 4) reach the age of 18.”  Her mission was to spare others the grueling hardships she endured.   “I got my fight back,” she recounts, “and I was motivated by pure anger.”

 

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World Cancer Day 2017: A few words from Deborah Cornwall, Part 4

by Deborah Cornwall, Cancer Advocate

Part 4:  Cancer’s Global Reach and Efforts to Fight Back

Cancer isn’t just a North American problem, but a global one. According to the American Cancer Society (ACS), worldwide cancer incidence is rising from 14.1 million new diagnoses in 2012 to a projected 21.7 million in 2030 as a result of population aging. In addition, incidence and death rates could rise even faster in low- and middle-income countries that are adopting Western lifestyle habits (with their associated smoking, high-fat diets, reduced exercise, and infection problems); impacts are severe since many of those countries lack the medical resources and healthcare infrastructure to properly diagnose and treat the flood of diagnosed patients.  The complexities of addressing such a cancer epidemic require multiple strategies, and many of them require research, collaboration, and information. They’re interconnected.

 

DebbieCornwallTriangle4

 

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World Cancer Day 2017: A few words from Deborah Cornwall, Part 3

by Deborah Cornwall, Cancer Advocate

Part 3:  Cancer’s Global Reach and Efforts to Fight Back

Cancer isn’t just a North American problem, but a global one. According to the American Cancer Society (ACS), worldwide cancer incidence is rising from 14.1 million new diagnoses in 2012 to a projected 21.7 million in 2030 as a result of population aging. In addition, incidence and death rates could rise even faster in low- and middle-income countries that are adopting Western lifestyle habits (with their associated smoking, high-fat diets, reduced exercise, and infection problems); impacts are severe since many of those countries lack the medical resources and healthcare infrastructure to properly diagnose and treat the flood of diagnosed patients.  The complexities of addressing such a cancer epidemic require multiple strategies, and many of them require research, collaboration, and information. They’re interconnected.

DebbieCornwallTriangle3

 

 

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World Cancer Day 2017: A few words from Deborah Cornwall, Part 2

by Deborah Cornwall, Cancer Advocate

Part 2:  Cancer’s Global Reach and Efforts to Fight Back

Cancer isn’t just a North American problem, but a global one. According to the American Cancer Society (ACS), worldwide cancer incidence is rising from 14.1 million new diagnoses in 2012 to a projected 21.7 million in 2030 as a result of population aging. In addition, incidence and death rates could rise even faster in low- and middle-income countries that are adopting Western lifestyle habits (with their associated smoking, high-fat diets, reduced exercise, and infection problems); impacts are severe since many of those countries lack the medical resources and healthcare infrastructure to properly diagnose and treat the flood of diagnosed patients.  The complexities of addressing such a cancer epidemic require multiple strategies, and many of them require research, collaboration, and information. They’re interconnected.

 

DebbieCornwallTriangle2

 

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