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Tag Archives: Childhood cancer

A Full Life and a Grateful Heart

by Marjorie McGibbon, RN BScN, Paediatric Oncology Patient Navigator

 

When you read the words Palliative Care, what did you think of?   For many years of my life, and even my nursing career, I thought of death.  And, it might still mean that to you.  But I want to share with you some thoughts to help you understand that it can mean so much more to all of us, and that there is a certain peace in acceptance of what it ultimately leads to:  End Of Life (EOL) care.  Years ago, and even recently, the palliative care team was associated with negative connotations:  “death squad,” “doom troops,” the list goes on.  Now, we are seeing a shift to a new approach and greater understanding of what these special caregivers can offer their patients, at any age and any stage of disease.

 

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Right to Try: A Significant Setback to Drug Development for Childhood Cancer

by Jonathan Agin, CKN Childhood Cancer Advocacy Editor

 

The United States House of Representatives is about to take a vote today (March 13, 2018) on a piece of legislation that is known as “The Right to Try Act of 2017.”  HR 878 will come to the floor for a vote at approximately 6:30 pm.  Over the summer the Senate passed S. 204 which, by the House moving on the legislation which is likely to pass tonight, will then be ripe for the Senate to once again move the legislation forward for signature by the White House and thus Right to Try will be codified on the federal level in the United States.

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Neurological Side Effects of Childhood Leukemia Treatment

by Vicky Forster PhD, Childhood Cancer Survivor

 

More children than ever before are surviving cancer for decades after their original diagnosis. However, survivors can experience long-term health effects from treatment, with the Canadian Cancer Society saying that two-thirds of children will develop one or more of these chronic or long-term conditions. In many ways, researchers and health professionals are playing catch-up trying to figure out what aspect of a childhood cancer experience may be responsible for these late health effects. This is particularly tricky with regards to psychological and neurological effects of treatment and for many chemotherapiesit is still unclear what impact these might have on the developing brain.

 

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What is the International Consensus on Screening for Heart Problems in Childhood Cancer Survivors?

GregoryAuneby Gregory Aune, MD, PhD, CKN Editor

 

Childhood Cancer Survivors have their own unique set of issues that often go unaddressed by health care professionals once treatment has ended and the child enters adulthood.  Although the last 20 years have seen growth in survivorship research, this research is rarely filtered down to the people who need it most – the survivors and their families.  Dr. Gregory Aune, Pediatric Oncologist, researcher, childhood cancer survivor and advocate, has taken on the position of CKN Editor, Knowledge Translation – Childhood Cancer Survivorship.  His goal is simple:  to help empower childhood cancer survivors to start a dialogue with their doctors by publishing short, easy-to-read research study summaries, like this one.

 


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Chemotherapy Exposure and EKG Changes: What Do They Mean?

GregoryAuneby Gregory Aune, MD, PhD, CKN Editor

 

Childhood Cancer Survivors have their own unique set of issues that often go unaddressed by health care professionals once treatment has ended and the child enters adulthood.  Although the last 20 years have seen growth in survivorship research, this research is rarely filtered down to the people who need it most – the survivors and their families.  Dr. Gregory Aune, Pediatric Oncologist, researcher, childhood cancer survivor and advocate, has taken on the position of CKN Editor, Knowledge Translation – Childhood Cancer Survivorship.  His goal is simple:  to help empower childhood cancer survivors to start a dialogue with their doctors by publishing short, easy-to-read research study summaries, like this one.

 


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We Must Consider New Strategies to Deliver Health Care to Childhood Cancer Survivors

GregoryAuneby Gregory Aune, MD, PhD, CKN Editor

 

Childhood Cancer Survivors have their own unique set of issues that often go unaddressed by health care professionals once treatment has ended and the child enters adulthood.  Although the last 20 years have seen growth in survivorship research, this research is rarely filtered down to the people who need it most – the survivors and their families.  Dr. Gregory Aune, Pediatric Oncologist, researcher, childhood cancer survivor and advocate, has taken on the position of CKN Editor, Knowledge Translation – Childhood Cancer Survivorship.  His goal is simple:  to help empower childhood cancer survivors to start a dialogue with their doctors by publishing short, easy-to-read research study summaries, like this one.

 


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