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Welcome to #YARally with Stephanie Madsen

StephanieMadsenRecent


Cancer Knowledge Network and Stephanie Madsen team up for Young Adult cancer patients and their cancer teams.

Read Stephanie’s Posts here:
Body Image
Relationships
Fertility
Finances
Recurrence

 

 


 

 

“It is my goal that by partnering with CKN, our voices will be heard where often they are overlooked. I invite you to join me in the movement to shine the spotlight on our generation as we face challenges many simply do not face. Cancer doesn’t define your life, and I hope to rally beside the men and women of my generation to help pave the way for improved care and heightened awareness.” – Stephanie Madsen

 

Cancer Knowledge Network (CKN) is launching a social media campaign to come alongside the YA generation to help alleviate the fear and stress that many experience. CKN believes in standing beside those who have received a cancer diagnosis by offering readers a tangible and practical way of living with cancer. Whether viewers are newly diagnosed, long term survivors, caregivers, or oncology professionals, CKN provides the navigation system through which they can find their way. By providing abundant resources that address all aspects of cancer, it is our goal to empower those facing this diagnosis with the knowledge, wisdom, and inspiration to fight.

 

Through this campaign, CKN has partnered with a recognized voice in the young adult cancer community. Stephanie Madsen is a writer and motivational speaker. Diagnosed with a rare cancer as a newlywed in her mid-twenties, Stephanie is a four-time survivor. Having undergone 55 chemotherapy treatments, 30 radiation therapy treatments, and four major surgeries, her experiences have allowed her to provide a unique and relatable perspective to those facing similar life challenges. Given a less than 20% chance of surviving one year from diagnosis, she is now celebrating being cancer-free.

 

Stephanie’s blog, DerailingMyDiagnosis.com, has emerged as a beacon of hope in the worldwide cancer survivorship community. Stephanie candidly shares the highs and lows of her journey with hundreds of thousands of visitors, all the while maintaining the survivor spirit and unshakeable faith needed to thrive in an otherwise hopeless situation. Her written work has been featured on The Huffington Post, Everyday Health, Coping With Cancer, and Livestrong, and she has appeared on numerous local television and radio broadcasts as well as the Ellen DeGeneres Show. She shares her experiences with others and speaks hope at survivorship events across the world. Stephanie lives in Denver, Colorado with her husband and two dogs.

 

Together, it is CKN and Stephanie’s goal to bridge the gap between young adult cancer patients and oncology physicians. Our mission is to make the voices of young adults with cancer heard so that improvements can be made and standardized within the greater healthcare community. In this social media campaign, Stephanie will be sharing personal accounts of her journey fighting this disease and the experiences she faces as a young adult living with cancer. She is passionate about inspiring others to live life intentionally, to be proactive about their healthcare, and to speak to physicians about what it’s like having cancer as a young adult.

 

Each month, Stephanie will write an article pertaining to a specific topic. These topics may include but are not limited to fertility, dating and relationships, body image, and finances. In addition, several Twitter chats will be held in order to establish ongoing conversation within the cancer community. Through this campaign, Stephanie and CKN hope to unite young adults affected by this disease. Our aim is to establish a consistent relationship between patient and physician, so that treatment options can be approached with a team effort.

 

Please join us as we seek to provide YAs with the knowledge they need to regain control of their lives through heightened awareness about issues such as sexuality, fertility, body image, dating and relationships, and more. Follow us on twitter using the hashtag #YARally.

 


 

 

We need your help to spread the word about #YARally to your communities. Your feedback will be presented to major oncology groups who are studying YA issues. It is our hope that your comments will equip these researchers with better insight so they can improve best practices and standards of care for YA patients.

 


 

Do you need a referral to a Fertility Centre?

Canada:  Please follow this link to find a Fertility Centre near you and to make an online self-referral to a Fertility Centre.  Your oncology team can also use this form to refer you to a Fertility Centre.  These fertility centres have been pre-screened to meet the needs of cancer patients and often have compassionate care programs for those in need of financial assistance.

U.S.A:  Please follow this link to find a Fertility Centre near you or call the FERT LINE at 1-866-708-FERT (3378).

 


 

Visit our Young Adult Cancer Page here for more information.

 


 

#YARally with Stephanie Madsen

StephanieMadsenRecent

Cancer Knowledge Network and Stephanie Madsen team up for Young Adult cancer patients and their cancer teams.

 

“It is my goal that by partnering with CKN, our voices will be heard where often they are overlooked. I invite you to join me in the movement to shine the spotlight on our generation as we face challenges many simply do not face. Cancer doesn’t define your life, and I hope to rally beside the men and women of my generation to help pave the way for improved care and heightened awareness.” – Stephanie Madsen

 

 

Cancer Knowledge Network (CKN) is launching a social media campaign to come alongside the YA generation to help alleviate the fear and stress that many experience. CKN believes in standing beside those who have received a cancer diagnosis by offering readers a tangible and practical way of living with cancer. Whether viewers are newly diagnosed, long term survivors, caregivers, or oncology professionals, CKN provides the navigation system through which they can find their way. By providing abundant resources that address all aspects of cancer, it is our goal to empower those facing this diagnosis with the knowledge, wisdom, and inspiration to fight.

 

Through this campaign, CKN has partnered with a recognized voice in the young adult cancer community. Stephanie Madsen is a writer and motivational speaker. Diagnosed with a rare cancer as a newlywed in her mid-twenties, Stephanie is a four-time survivor. Having undergone 55 chemotherapy treatments, 30 radiation therapy treatments, and four major surgeries, her experiences have allowed her to provide a unique and relatable perspective to those facing similar life challenges. Given a less than 20% chance of surviving one year from diagnosis, she is now celebrating being cancer-free.

 

Stephanie’s blog, DerailingMyDiagnosis.com, has emerged as a beacon of hope in the worldwide cancer survivorship community. Stephanie candidly shares the highs and lows of her journey with hundreds of thousands of visitors, all the while maintaining the survivor spirit and unshakeable faith needed to thrive in an otherwise hopeless situation. Her written work has been featured on The Huffington Post, Everyday Health, Coping With Cancer, and Livestrong, and she has appeared on numerous local television and radio broadcasts as well as the Ellen DeGeneres Show. She shares her experiences with others and speaks hope at survivorship events across the world. Stephanie lives in Denver, Colorado with her husband and two dogs.

 

Together, it is CKN and Stephanie’s goal to bridge the gap between young adult cancer patients and oncology physicians. Our mission is to make the voices of young adults with cancer heard so that improvements can be made and standardized within the greater healthcare community. In this social media campaign, Stephanie will be sharing personal accounts of her journey fighting this disease and the experiences she faces as a young adult living with cancer. She is passionate about inspiring others to live life intentionally, to be proactive about their healthcare, and to speak to physicians about what it’s like having cancer as a young adult.
Each month, Stephanie will write an article pertaining to a specific topic. These topics may include but are not limited to fertility, dating and relationships, body image, and finances. In addition, several Twitter chats will be held in order to establish ongoing conversation within the cancer community. Through this campaign, Stephanie and CKN hope to unite young adults affected by this disease.  Our aim is to establish a consistent relationship between patient and physician, so that treatment options can be approached with a team effort.

 


 

Please join us as we seek to provide YAs with the knowledge they need to regain control of their lives through heightened awareness about issues such as finances, fertility, body image, dating and relationships, and more. Follow us on twitter using the hashtag #YARally.

We need your help to spread the word about #YARally to your communities. Your feedback will be presented to major oncology groups who are studying YA issues. It is our hope that your comments will equip these researchers with better insight so they can improve best practices and standards of care for YA patients.

 


 

 

Cancer and Young Adult LGBs

SophiaFantusby Sophia Fantus

Adolescents and young adults (AYAs) with cancer are informed of their fertility preservation (FP) options with the intention that, if possible, they are able to consider having biologically-related children after treatment. The increasing social and political inclusivity of lesbian, gay, and bisexual (LGB) populations, and advancements in fertility treatments, have encouraged a growing number of LGB AYAs to consider biological parenthood. For LGB AYAs, the process of FP is likely different than for heterosexual AYAs. Decisions surrounding FP may be shaped by legal regulations (e.g., prohibitions surrounding same-sex marriage, adoption or surrogacy), as well as negative social attitudes and discriminatory practices that perpetuate stereotypes that LGB individuals and same-sex couples are morally unfit to parent. LGB AYAs with cancer also may not have the same general reactions and responses associated with possible infertility as their heterosexual peers. How these experiences influence LGB AYAs’ concerns surrounding FP is important to bear in mind.

 

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Goserelin in Fertility Preservation

Rachel Adilmanby Rachel Adilman, BSc

 

One of the most commonly used chemotherapy drugs, cyclophosphamide, can lead to ovarian failure and loss of fertility, a tragic consequence of cancer treatment that has led researchers world-wide in search of a solution.  The risk of chemotherapy to induce premature menopause is well-documented, and depends largely on the patient’s age, as well as the type and dose of chemotherapy.  The risk of premature menopause (i.e. permanent amenorrhea) following cytotoxic chemotherapy is 50% in women aged 35-50, and as high as 85% in women over the age of 40 [Wong et al., 2012].

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Babies on the Brain

MattStephanieMadsenby Stephanie Madsen, Living with Cancer

Prior to my diagnosis, my husband and I spoke frequently about having children. We dreamt about how many we would have and what their names would be. We laughed at who they would take after. Would they be fiercely independent (and stubborn) like their momma or gentle and patient like their daddy? Would they have Matt’s tan complexion and my blue eyes? We noticed every pregnant woman passing by and couldn’t even walk through Target without perusing the baby section, dreaming of all the possibilities to come. Babies were destined to be in our future.

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