by Dee Sparacio
In 2015, I wrote an article for Cancer Knowledge Network about the founding of the #gyncsm Community in 2013. (https://cancerkn.com/a-twitter-community-for-those-impacted-by-gynecologic-cancer-is-born-and-grows/). #Gyncsm is a Twitter community for those impacted by gynecologic cancers – gynecologic cancer survivors, patient advocates, caregivers, researchers and health care providers. As we look forward to 2018, the community continues to grow and find ways to collaborate.
When we founded the #gyncsm community in 2013, Christina Lizaso (@btrfly12) and I (@womenofteal) were pleased to have Rick Boulay, MD (@journeycancer), Don Dizon, MD (@drdonsdizon), MJ Markham, MD (@DrMarkham ), Matthew Katz, MD, (@subatomicdoc) and Dr. Ann Becker-Schutte (@DrBeckerSchutte) join us in this endeavor. Due to other professional commitments, Dr. Dizon left his role as a monthly chat moderator in 2015 but along with Tamika Felder, OCRFA, SGO and Foundation for Women’s Cancer he continues to provide support to our community. We were pleased to have Shannon Westin, MD (@ShannonWestin) join us as our new monthly chat moderator in December of 2015.
Jessica (left) and her Oncologist
by Jessica Sultaire, Living with Cancer
Up until my early twenties, the only doctors I really knew were my pediatrician, dentist, and OB-GYN. The doctor/patient relationship was cordial, routine, and a blip on the radar in the grand scheme of my life. I mean, doctors are people who give you a z-pack and send you on your way, right?
A Twitter Community for Those Impacted by Gynecologic Cancer is Born… and Grows
by Dee Sparacio
“I wish I could start a group like this for Ovarian Cancer survivors. #BCSM” @womenofteal
“@womenofteal maybe we should try. I know one gyn onc on twitter who might help #bcsm” @btrfly12
It was late 2012 when I had that initial tweet exchange with Christina Lizaso, (@btrfly12), an ovarian cancer advocate. I had been warmly welcomed to the #bcsm chat community by the moderators but still felt the need to interact with other gynecologic cancer survivors.
by A. Bagnato, L. Rosanò
Epithelial ovarian cancer ( eoc ) is the leading cause of gynecologic cancer mortality worldwide. The drug-resistant nature of eoc cells means that effective chemotherapies are lacking, which contributes to the high mortality in patients diagnosed with eoc 1. This disappointing situation strongly suggests that improved understanding of the drug-resistance mechanistic underpinnings of eoc could lead to the development of novel therapeutic strategies for successful treatment of patients.
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