Follow Us Here:

Cancer Knowledge Network

Cancer Knowledge Network and Current Oncology are proudly published by Multimed Inc.
0
Menu
Advocate - Educate - Innovate

Tag Archives: Palliative care

Physician-Assisted Death is not Palliative Care

paliative_care_treeL. Herx , MD PhD, Department of Oncology, University of Calgary

This article originally appeared in Current Oncology

On February 6, 2015, the Supreme Court of Canada made a unanimous decision that it is unconstitutional to prohibit physician-assisted death. Physician-assisted death includes both physician-assisted suicide and voluntary euthanasia. In the past weeks, much has been said about end-of-life care and physician-assisted death being a “therapeutic service” for some Canadians, but critical elements have been lacking or clouding this discussion. In particular, little has been said about what palliative care is, and while much has been said about death, little has been said about the life stage of dying. Lastly, a myriad of confusing language has been used in this debate. Physician-assisted death is not “medically-aided dying,” nor should it be confused with palliative care.

Continue reading

YAFC: Metastatic Cancer & Palliative Care

 

 

by Dr. Alisha Kassam

When cancer has metastasized it means that it has spread from the place where it first started to another organ or tissue in the body.  Although some types of metastatic cancer in young adults can be cured, for many, a diagnosis of metastatic cancer means that cure may no longer be possible.  Nonetheless, cancer treatments are often available for all metastatic cancers to help slow the growth of the cancer and control symptoms.  These treatments may also help prolong life and a number of patients with metastatic disease can enjoy good quality of life for months, or in some cases, years.

Continue reading

Author Commentary Early Palliative Care: Improving Quality of Life in the Outpatient Setting

paliative_care_treeby Camilla Zimmermann, MD, PhD, FRCPC

It is often stated that timely palliative care improves quality of life for patients with advanced cancer. However, studies in this area are difficult to carry out, and there is scant evidence for this assertion. As well, there is a misconception among patients – also some oncology clinicians – that palliative care is relevant only after all other cancer treatment has been exhausted. Referrals to palliative care are therefore often deferred, and may not occur at all. We conducted a randomized controlled trial to determine whether routine early involvement of specialized palliative care in the outpatient setting would improve quality of life for patients with advanced cancer. The study took place at the Princess Margaret Cancer Centre and was funded by the Canadian Cancer Society.

Continue reading

Cancer patients, Emergency Room visits and Palliative Care Services: The Canary in the Coal Mine?

canary_in_a_coal_mineby Bejoy Thomas1, Eddy Lang2, Rebecca Malhi3, Aynharan Sinnarajah4

1 Coordinator, Department of Psychosocial Resources, CancerControl Alberta, Tom Baker Cancer Centre, Alberta Health Services, and Adjunct Assistant Professor, Department of Oncology, Division of Psychosocial Oncology, University of Calgary

2 Interim Department Head, Associate Professor, University of Calgary, Department of Emergency Medicine, Senior Researcher, Alberta Health Services, Calgary Zone

3 Research Associate, Department of Oncology, Division of Psychosocial Oncology, University of Calgary

4 Physician Consultant, Palliative & End of Life Care, Clinical Informatics, Alberta Health Services – Calgary Zone Clinical Lecturer, Section of Palliative Medicine, Dept of Oncology, University of Calgary

 

 

A quick scan of the literature on Emotional Distress: the 6th Vital Sign indicates a substantial proportion of cancer patients (as high as 35-45%) experience high levels of distress from unrelieved and often debilitating symptoms1-13. Despite the recent implementation of the 6th Vital Sign, clinical acumen (in a fragmented way) has attempted to meet the need with extensive services, resources and programs, like the fatigue clinic, psychosocial oncology services, rehabilitation unit, and palliative care services. One of our earlier studies identified that regardless the obvious symptom burden (e.g. very high levels of fatigue) as endorsed by patients, there seems to be an under-utilization of resources designed to mitigate these specific needs – e.g. the skew in the patient profile that accessed the fatigue class14.  Also, despite a body of research that highlights the benefits of early access to palliative care, including prolonged survival and an improvement in quality of life15, palliative care seems to be under-utilized for reasons that are important to understand.

Former Canadian senator Carstairs’ report on palliative care in 201016 estimated palliative care availability in Canada, for those in need, to be 16-30% with variation a function of location. Our previous research demonstrated, retrospectively, that 31% of deceased cancer patients (n=<2000) had not accessed palliative care – predictors of lack of use were low income and low education. Of those that did utilize some type of palliative care service, overlapping pathways included palliative home care (69%), inpatient palliative care unit (32%), and hospice (53%). Furthermore, we found that patients with high symptom burden were likely to have lower utilization of palliative care services or other existing supportive care services13. This data provided us with a starting point for the current study. If cancer patients have high levels of symptom-related distress, where are they going? Instead of utilizing existing supportive care services, might they be accessing the emergency department (ED)? We were particularly interested in examining the rate of use of ED and palliative care – in the first year following baseline screening – as well as determining the demographic and psychosocial predictors of each type of service used. This analysis is currently ongoing.

The sample in the cited published abstract17 comprised of the 4,329 patients who agreed to participate in Screening for Distress data collection between July 2007 and March 2010. We found that 1,881 patients (44%) made 4,623 visits to ED. Of these patients, 45% made one visit, with 47% making two to five visits and the remaining 8% made six or more visits – with most visits occurring within 6 months of initiating treatment. This study represented a first step in quantifying the utilization patterns of palliative care and ED services by cancer patients in Calgary, Alberta. Subsequent phases will analyse the linked databases to answer questions like: What are the demographics of patients with high symptom burden yet who under-utilize existing supportive care resources? Does palliative care usage in the first year of diagnosis lead to an impact on use of ED? Specifically, we will identify factors that predict ED and palliative care utilization after cancer diagnosis, and determine predictors of repeat utilization over longer follow-up. Even though research exists that associates reduced ED use in the last 90 days of life with earlier palliative care intervention, an outstanding question is whether this reduction also occurs from the time of diagnosis. Ultimately, we would want to see change in 3 critical areas:

  1. At the tertiary level, the ability to facilitate resource access and utilization – proactively, thereby reducing symptom burden;
  2. The development of interventions and resources to increase appropriate referrals to palliative care services earlier in the disease trajectory; and
  3. Despite all the safety nets in place, patients with poor symptom control but still on active treatment may still present at the ED. In such cases, we would like the emergency medicine physician to consider a palliative care referral and not associate the process to just end-of-life care.

At the tertiary level, interventions could include the use of patient-oriented language (systemic use of health literacy principles), or creating the flexibility to offer targeted services that are adapted (fatigue/ sexuality issues for the younger vs. older cancer patient; or considering patient language and ethnicity/race) and adjusted to patient need (same resource in multiple formats e.g. classes, one-on-one service, podcast, web-based tools, etc). A further intervention would be to integrate palliative care consultants (preferably tumour-based) into the ambulatory oncology clinics as part of the primary care team. This is already occurring in the Brain metastases clinic in Calgary where the palliative care consultant works with the radiation oncologist in seeing most of the patients who come through the clinic for consultation18. Further efforts at expanding into additional clinics are being explored.

Another intervention that could improve care delivery and optimize referrals would be a palliative-focused order set that targets ED users and alerts clinicians to linkages with community palliative care resources. There would also be evidence-based options provided around symptom control in this order set.

The term ‘palliative care’ can mean different things to different people. Many confuse it as being synonymous with ‘end of life’. But by most definitions, palliative care is focused on improving quality of life of those with life-limiting illness, regardless of prognosis. Thus improving access to, and capacity of, palliative care in cancer centres as well as raising the public profile of palliative care is an ongoing concern. On the public front, the Canadian Hospice and Palliative Care Association (www.chpca.net) has been spearheading the ‘Speak Up: Start the Conversation about end-of-life care’ initiative, which focuses on the importance of Advance Care Planning for all.

As is evident in this brief commentary, a lot more work needs to be done. As part of a very large team comprising of clinicians, administrators, health services researchers, we believe that improving the interdisciplinary nature of cancer care benefits not just the patient (and family) in their cancer journey but the health system as a whole in terms of efficiency and efficacy of care delivery.

 


 

 

References

(1) Bultz, B.D & Carlson, L.E. Editorial: Effects of Screening for Psychological Distress on Patient Outcomes in Cancer: a Systematic Review. Journal of Psychosomatic Research, in press (2013).

(2) Bultz, B.D., Waller, Jones, P., Halland, J., Cullum, J., A., Groff, S., Leckie, C. Shirt, L., Blanchard, S., Lau, H., Easaw, J., Carlson, L.E. Implementing Routine Screening for Distress, the 6th Vital Sign, for Head and Neck and Neurological Cancer Patients. Journal of the National Comprehensive Cancer Network, in press (2013).

(3) Breitbart, W., Bultz, B.D., Dunn,L., Grassi, L., Watson, M. Editorial: 2012 President’s Plenary International Psycho-Oncology Society:  future directions in psycho-oncology.  Psycho-Oncology. Oncology Exchange 2013 (22): 1439-43; DOI: 10.100/pon

(4) Carlson L.E, Waller, A., Groff SL, Zhong L, Bultz B.D. (2013). Reply: benefits of screening cancer patients for distress still not demonstrated. Br J Cancer. 108(3):738-9. doi: 10.1038/bjc.2013.17. Epub 2013 Jan 31.

(5) Waller, A., Groff, S.L., Hagen, N., Bultz, B.D., Carlson, L.E. Characterizing Distress, the 6th Vital Sign, in an Oncology Pain Clinic. Current Oncology. 2012 Apr;19 (2):e53-9.

(6) Waller A., Garland, S., Bultz, B.D. Using Screening for Distress, the 6th Vital Sign to Advance Patient Care with Assessment and Targeted Interventions. Supportive Care in Cancer, Volume 20, Number 9 (2012), 2241-2246

(7) Carlson, L.E., Waller, A., Groff, S.L., & Bultz, B.D. Screening for Distress, the 6th Vital Sign, in Lung Cancer Patients: Effects on pain, fatigue and common problems – secondary outcomes of a randomized controlled trial. Psycho-Oncology. 2012 Nov 12. doi: 10.1002/pon.3223

(8) Waller, A., Williams, A.D., Groff, S.L., Carlson, L.E. & Bultz, B.D. Screening for Distress, the 6th Vital Sign: Examining self-referral in people with cancer over a one year period. Psycho-oncology 2011; doi: 10.1002/pon.2102

(9) Bultz BD, Groff SL. Screening for Distress, the 6th vital sign in oncology: from theory to practice. Oncology Exchange 2009; 8(1):8.

(10) Thomas BC, Bultz BD. The future in psychosocial oncology: screening for emotional distress–the sixth vital sign. Future Oncol. 2008 Dec; 4(6):779-784.

(11) Bultz BD, Thomas BC, Stewart DA, Carlson LE. Distress – the sixth vital sign in cancer care: Implications for treating older adults undergoing chemotherapy. Geriatrics and Aging 2007; 10(10):647-653.

(12) Holland JC, Bultz BD, National comprehensive Cancer Network (NCCN). The NCCN guideline for distress management: a case for making distress the sixth vital sign. J.Natl.Compr.Canc Netw. 2007 Jan; 5(1):3-7.

(13) Carlson, L.E., Waller, A., Groff, S.L., Zhong, L., & Bultz, B.D. Online screening for distress in newly diagnosed oncology outpatients: Randomised controlled trial of computerised vs. personalized triage. 2012British Journal of Cancer, 107, 617-625.

(14) Alexeeva I, Thomas BC, Pelletier G. Psychosocial characteristics of cancer patients who choose to attend an educational session on cancer related fatigue. Cancer Nursing. 2008 September/October, 31(5):408-414.

(15) Temel JS, Greer JA, Muzikansky A, et al.  Early palliative care for patients with metastatic non-small-cell lung cancer. N Engl J Med. 2010 August; 363(8):733-742.

(16) Carstairs, S. Raising the bar: A roadmap for the future of palliative care in Canada. June 2010. Downloaded from www.chpca.net/media/7859/Raising_the_Bar_June_2010.pdf‎.

(17) Prystajecky M, Lang E, Wang D, Simon J, Sinnarajah A, Martin TLW, Murray A, Hagen N, Waller A, Bultz B.D., Carlson L, Groff S, McRae A, Thomas BC. Emergency Department Utilization by Adult Cancer Patients: A Prospective Cohort Study. CJEM, 2012, 14, S1:5522

(18) Jung H, Sinnarajah A, Enns B, Voroney JP, Murray A, Pelletier G, Wu JS. Managing brain metastases patients with and without radiotherapy: initial lessonsfrom a team-based consult service through a multidisciplinary integrated palliative oncology clinic. Support Care Cancer. 2013 Aug 10. [Epub ahead of print]

 

 

 

Palliative Care Education for Healthcare Students and Professionals in Western Australia

GlobalOncologyCancer Knowledge Network is pleased to announce our collaboration with the Global Oncology Initiative (GO!) at Harvard’s Medical School, School of Public Health and affiliated hospitals. We hope this synergistic partnership will grow the diversity and breadth of information and experiences shared. Furthermore, we also hope to facilitate networking and connect medical students, residents and physicians with common goals in global oncology to achieve their endeavors.  We hope you take advantage of the interesting expert interviews, articles on global oncology experiences and discussion videos put forth in collaboration with GO!.


 

Continue reading

Compassion in Action: Comprehensive, Community-Based Palliative Care in Neno, Malawi

GlobalOncologyCancer Knowledge Network is pleased to announce our collaboration with the Global Oncology Initiative (GO!) at Harvard’s Medical School, School of Public Health and affiliated hospitals. We hope this synergistic partnership will grow the diversity and breadth of information and experiences shared. Furthermore, we also hope to facilitate networking and connect medical students, residents and physicians with common goals in global oncology to achieve their endeavors.  We hope you take advantage of the interesting expert interviews, articles on global oncology experiences and discussion videos put forth in collaboration with GO!.

 

 


 

 

 

Student Experiences from GO! – Compassion in Action: Comprehensive, Community-Based Palliative Care in Neno, Malawi

 

by Shekinah Elmore, Harvard Medical School 2014

 

Neno, Malawi is a somewhere I’d never heard of when making plans to work on a palliative care project during the summer between my first and second years of medical school. I felt myself a rather savvy global health practitioner, having worked in Rwanda and Mozambique, largely with community health workers in very rural settings. But, Malawi hadn’t registered as clearly in my geography of the region. And, as for Neno, well I couldn’t even pretend to have heard its name before.

What I wanted most as a medical student was to find a palliative care and cancer care project in East Africa that I could work on throughout my time as a student, and perhaps even beyond. Though I’d never worked in Palliative Care, it seemed to me the culmination of everything that I loved about medicine: compassion in action. Palliative care practitioners moved adeptly with the patient and family, traveling with them and offering solutions, come what may….continue reading