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Tag Archives: pediatric cancer

September is Childhood Cancer Awareness Month: Go for the Gold

goldribbonAs part of CKN’s commitment to raising awareness about Childhood Cancer, we invited various organizations to join our “Childhood Cancer: Go for the Gold” campaign.  We feel the time has come to join together and unite in the effort to increase public knowledge about childhood cancer through the Gold Ribbon Symbol and September: Childhood Cancer Awareness Month.

Please join us as we come together to give a voice to the children who are silently fighting this deadly disease.  Like us on Facebook so you receive our powerful line-up of articles this month – and please share them with your contacts to spread the word.

 

Today’s Feature:  Ontario Parents Advocating for Children with Cancer (OPACC)

 

Ontario Parents Advocating for Children with Cancer (OPACC) is a registered charity whose overall goal is to be the parent voice for families with children diagnosed with cancer across the Province of Ontario. Established in 1995 and a charity since 2006, OPACC is comprised of parents, guardians, survivors, or close relatives of a child/teen diagnosed with childhood cancer. Our primary focus in helping these families is the Parent Liaison program, which is already operating at The Hospital for Sick Children in Toronto.  Parent Liaisons are professionals and parents who have already undertaken a childhood cancer journey and understand the impact a diagnosis has on the entire family. They help parents from a non-medical point of view and can help direct them through the myriad of services and opportunities that exist for families both in and out of the hospital. They offer drop-in support groups, one-on-one visits to families, distribution of free support materials, and more. In addition to the in-hospital support provided through our Parent Liaison program, OPACC also works with local community groups across the Province to build a network of local community-based Parent Support groups to ensure that families are supported once they are back home. As OPACC grows, we will continue to establish more Parent Support Groups throughout Ontario, as well as bring our Parent Liaison Program to other Pediatric Cancer Centres.

 

This September, we are running a Parent Facilitator training course in Toronto for those interested in becoming facilitators for new or existing childhood cancer parent support groups, and we are also hosting the Toronto location of the National Inside Ride Tour in October to raise funds for support and awareness for childhood cancer.

http://www.opacc.org

 

 

 

September is Childhood Cancer Awareness Month: Go for the Gold

goldribbonAs part of CKN’s commitment to raising awareness about Childhood Cancer, we invited various organizations to join our “Childhood Cancer: Go for the Gold” campaign.  We feel the time has come to join together and unite in the effort to increase public knowledge about childhood cancer through the Gold Ribbon Symbol and September: Childhood Cancer Awareness Month.

Please join us as we come together to give a voice to the children who are silently fighting this deadly disease.  Like us on Facebook so you receive our powerful line-up of articles this month – and please share them with your contacts to spread the word.

 

Today’s Feature:  Children’s Brain Tumor Foundation

 

Children’s Brain Tumor Foundation is a non-profit organization whose mission is to improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors. CBTF was founded in 1988 by dedicated parents, physicians and friends.

CBTF offers a wide range of support services for families, survivors and bereaved families. The Family 2 Family mentoring program matches newly diagnosed families with caregivers, survivors, or bereaved families.

Family activities include the Kid’s Cruise, Big Apple Circus and annual holiday parties along with other events and opportunities throughout the year to connect families and survivors.

CBTF offers camps at Happiness is Camping in Hardwick, New Jersey: a Family Camp, and the Just Us: Dad and Survivor Camp.  CBTF also holds The Heads Up Conference for teens and young adult survivors at Camp Mak-a-Dream in Gold Creek, Montana.

Hospitals and individuals can request complimentary educational materials.

Please visit our website (www.cbtf.org) for details on any of our programs and events or email info@cbtf.org for any inquires or to speak with one of our social workers.

 

 

 

September is Childhood Cancer Awareness Month: Go for the Gold

goldribbonAs part of CKN’s commitment to raising awareness about Childhood Cancer, we invited various organizations to join our “Childhood Cancer: Go for the Gold” campaign.  We feel the time has come to join together and unite in the effort to increase public knowledge about childhood cancer through the Gold Ribbon Symbol and September: Childhood Cancer Awareness Month.

Please join us as we come together to give a voice to the children who are silently fighting this deadly disease.  Like us on Facebook so you receive our powerful line-up of articles this month – and please share them with your contacts to spread the word.

 

Today’s Feature:  Children’s Cancer Association (CCA)

 

Children’s Cancer Association (CCA) is a national leader providing free, innovative programs of JoyRx and has connected hundreds of thousands of children, teens, and their family members to the power of hope, comfort, and happiness in the last two decades.

CCA didn’t start with a foundation, it started with a family. One who faced its own battle with serious pediatric illness in Portland, Oregon. From that experience came a passionate focus on the moment, and a commitment to deliver immediate help to kids when their need is the greatest.

We prescribe joy. CCA knows that in the fight against devastating illness, joy is often forgotten and something every child deserves. When seriously ill children, teens, and their families need more than medicine, CCA’s innovative programs create joy one moment at a time.

JOYRx.org

“Kids deserve long wonderful lives. Or at the very least, short wonderful lives. One day kids who are diagnosed with cancer or terminal illness will be delivered an inexhaustible infusion of JoyRx alongside traditional treatments and state-of-the-art medical interventions. Making room for JOY in the moments between life and death will change lives for the better – yours, mine, ours.”

Regina Ellis, CCA Founder and CEO

 

 

 

September is Childhood Cancer Awareness Month: Go for the Gold

goldribbonAs part of CKN’s commitment to raising awareness about Childhood Cancer, we invited various organizations to join our “Childhood Cancer: Go for the Gold” campaign.  We feel the time has come to join together and unite in the effort to increase public knowledge about childhood cancer through the Gold Ribbon Symbol and September: Childhood Cancer Awareness Month.

Please join us as we come together to give a voice to the children who are silently fighting this deadly disease.  Like us on Facebook so you receive our powerful line-up of articles this month – and please share them with your contacts to spread the word.

 

Today’s Feature:  Childhood Cancer Epidemiology Research Alliance, CCE RA, an independent global non-for-profit organisation, registered in the UK (CRN: 1130106)

More than 1,000,000 children around the world develop cancer each year. Millions are in care! For a parent, having a child diagnosed with cancer can be one of the most difficult, emotional and overwhelming experiences they will ever face.

 

CCE RA supports epidemiological research and studies focusing on the causes of childhood cancers, first time diagnosis, relapses and late effects.

 

Current projects include:

 

  • ChildBASE – history  database to be used in population-based studies.
  • TrueVIEW – statistical  outputs of childhood cancers worldwide, country by cancer type.

 

CCE RA provides short and long term virtual student internships.

 

www.cce-researchalliance.com

 

 

 

September is Childhood Cancer Awareness Month: Go for the Gold

goldribbonAs part of CKN’s commitment to raising awareness about Childhood Cancer, we’ve invited various organizations to join our “Childhood Cancer: Go for the Gold” campaign.  We feel the time has come to join together and unite in the effort to increase public knowledge about childhood cancer through the Gold Ribbon Symbol and September: Childhood Cancer Awareness Month.

Please join us as we come together to give a voice to the children who are silently fighting this deadly disease.  Like us on Facebook so you receive our powerful line-up of articles this month – and please share them with your contacts to spread the word.

 

Today’s Feature:  Monty’s Corner – Worldwide Support for all Affected by Childhood Cancers.

A precious child has been diagnosed with cancer. Life changes forever for those who are close to this child. No one looks at life as they used to anymore.

Having a child diagnosed with cancer is not just a medical journey – it is a terribly difficult and heart-wrenching emotional experience. Feelings, and subsequently behaviours, change immediately after the diagnosis. Everything becomes extremely overwhelming for everybody – family, relatives and friends. There are no right or wrong feelings and behaviours. Although medical treatments and outcomes are unique to the individuals, the feelings and behaviours that follow diagnosis show commonality regardless of location or background. They are how we learn to cope.

Monty’s Corner gives support to all affected by childhood cancers by providing practical guidance on how to cope with the illness, and information on complementary (non-medical) therapies, activities for children, inspirations and many more…

Monty’s Corner is starting its annual support event, Ring of Yellow Heart 2, in September. Monty’s Yellow Heart will travel the world, and visit children in hospitals to bring encouragement and hope by engaging them in collaborative activities.

www.montyscorner.org