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Tag Archives: pediatric palliative care

George Mark Children’s House: a pediatric palliative care center

AlyssaEriksonby Alyssa Erikson, RN, PhD

 

It was the weekend and my shift was nearing the end. The patient was secured in his wheelchair, ready to go home. He lives with a serious chronic condition, which requires intensive, around-the-clock care. I helped the parents pack and load everything he needs for daily survival – a suction machine, a nebulizer, a large bag of medications, the oxygen tank. They had just returned from a five day vacation, which was their first trip away together in many years. They joked about how much they slept while away. Once everything was loaded, we walked out of the room and to their van. As we stepped out, his dad turned to me and said, ““If I had a few million dollars, I would donate it all to this place.”

 

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Pediatric Palliative Care: A Multidisciplinary Approach

TrishaPaulby Trisha Paul, CKN Advisory Board Member, Childhood Cancer Narratives

 

I have to admit—one of the first reasons that palliative care first piqued my interest was because I wanted to learn more about death. But as I’ve delved deeper into palliative care, I’ve come to realize just how much more comprehensive it is. While increasing access to hospice care is a component of what palliative care provides, palliative care does so much more for patients and families.

 

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Discovering a Passion for Pediatric Palliative Care

TrishaPaulby Trisha Paul, CKN Advisory Board Member, Childhood Cancer Narratives

 

As someone who loves spending time with kids, I was thrilled when I was placed to volunteer on the 7th floor pediatric oncology inpatient playroom at C.S. Mott Children’s Hospital. Although I was just in high school, I had an early interest in becoming a pediatrician, and Mott seemed like the perfect place for me to learn more.

 

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