Follow Us Here:

Cancer Knowledge Network

Cancer Knowledge Network and Current Oncology are proudly published by Multimed Inc.
0
Menu
Advocate - Educate - Innovate

Tag Archives: robin mcgee

When Patient Engagers meet Patient Advocates: The 5 Levels of Public Participation

RobinMcGeeby Dr. Robin McGee, CKN Patient Advocacy Editor

 

Patients and families wonder how to get involved in advocacy.   We want to help solve the problems we may have encountered on our cancer journeys, or share our aspirations for better care.  We want to give back to the system, but we are not sure where to start.  We do not know what degree of involvement with the system is welcome or appropriate.

Continue reading

What is a Patient Engagement Coordinator and how do they Help Patients Advocate?

RobinMcGeeby Dr. Robin McGee, CKN Patient Advocacy Editor

 

Many Canadian provinces have government branches responsible for Cancer Care.   In my home province of Nova Scotia, I have had my efforts at advocacy supported by the Patient Engagement Coordinator.   In this guest blog, Leslie Hill describes her role.   If you are a Canadian interested in advocacy, contacting the Patient Engagement Coordinator in your province could be your first step to a rewarding adventure.

 


Continue reading

5 Myths about Patient Advocates

RobinMcGeeby Dr. Robin McGee, CKN Patient Advocacy Editor

 

Healthcare providers like myself are often called to be on working groups that seek to improve care delivery.   We meet as a multidisciplinary team to develop guidelines, policies, and practice.  In recent years, in response to the patient engagement movement, “patient advisors” have joined providers on such efforts.   Now, I have been on both sides of the table: I have served as the cancer patient representative on several such committees.   Those experiences have taught me a great deal about the role and value of cancer patient advocacy at the discussion table.

 

Continue reading

Why Advocate?

RobinMcGeeby Dr. Robin McGee, Patient Advocacy Section Editor

 

When our involvement with the cancer system ends, many of us wonder how to give back.  Some of us have had excellent experiences, and we want to ensure others do too.  Some of us have had horrific experiences, and we want to prevent such harms from happening to others.  Some of us have lost loved ones, and want to honour their lives by striving to bring about better and more responsive care.  Some have a hunger for social justice, and want patients to be treated with fairness.   Some of us are healthcare providers, and are frustrated by obtuse policies which compromise best care practices.   We come together with many motives to improve the system.

 

Continue reading