Patient Engagement: A CKN Case Study
Engaging the patient voice in everything we publish is something CKN is proud to achieve as an organization. We strongly believe patients need to be heard at the research level and communicated to at the publication level.
One example of how CKN does this is through the #KidsCancerPain campaign. Unfortunately, we know that children with cancer don’t always receive the best pain management possible, and that parents are often looking for more solutions at a time when they are already stressed and exhausted. We also know that parents who have gone through a cancer diagnosis and treatment with their child have valuable information to share.
Thus, CKN assembled a panel of parents who have experience with childhood cancer; these parents act as advisors to inform the #KidsCancerPain project every step of the way. We are now fast tracking parent-informed, evidence-based resources to parents on the CKN website and social media platforms, so they can serve as powerful advocates in improving their children's pain management.
Please follow our social media campaign for parents: “Making Cancer Less Painful For Kids” (#KidsCancerPain). The campaign is funded by a research grant from the Canadian Cancer Society.
A Note from the CKN Team
CKN is recognized by the medical and patient communities as a reputable go-to resource, providing vetted and peer reviewed information as evidenced by the quality of our content and our writers. One of our top priorities is to provide our readers with current, evidence-based research about Complementary and Alternative Medicine (CAM), research that often doesn’t filter down to the patients.
Research has shown that the CAM decision-making process usually begins immediately following a cancer diagnosis; at the time of diagnosis, patients are particularly interested in CAM therapies that will enhance the effectiveness of their conventional treatment protocols and mediate potential side effects such as fatigue, nausea and vomiting, and anxiety; the information gathering and evaluation phase can be an anxiety-provoking experience for cancer patients.
As such, we’d like to extend a warm welcome to Dr. Hayley Erdman ND, who has joined our editorial team! Dr. Erdman will support our readers in these areas of CAM research by writing a bi-monthly blog series.
As always, we will balance this perspective by hearing from cancer patients and caregivers about their personal experiences around these issues.
Stay tuned and follow our content here.
Lorne Cooper - CEO, Multimed Inc.
Lorne’s ability to develop a conceptual model into practical programs and sustainable businesses is an expertise sought out by many corporations, non-profit organizations and small businesses. His ability to ascertain the marketplace and identify key opportunities for project development has been the cornerstone of his career.
Karen Irwin - CKN Project Co-ordinator
As Project Coordinator, Karen liaises with all CKN editors and writers and is responsible for managing the website and its editorial content. Karen brings her unique personal perspective to CKN, after losing her son to cancer at the age of 7. As a pediatric caregiver her experience and insight plays an important role.
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Oncofertility Referral Network
Oncofertility has emerged as a new interdisciplinary approach to address the reproductive future of young men, women, and children facing a life-preserving but fertility threatening cancer diagnosis. The CKN Oncofertility Referral Network is a nationwide platform that links patients, physicians and fertility clinics to ensure time-sensitive needs are met in providing fertility options for young cancer patients as they embark on treatment.